Creating a Safe, Fragrance-Free Environment That's Healthy for All of Us

Or,

Listening to the "Canaries in the Mine" Sing for the Benefit of All Beings

by Diana Lion



Over the last fifteen years I have gradually become more and more chemically sensitive.  It started with runny eyes from being around perfumed products, and gradually got worse.  Over a period of a decade and a half, I realized that I had changed my entire lifestyle.  I was getting several migraines each week, seeing four different wholistic practitioners to help me with pain, and carrying around various pain meds wherever I went.  Since public spaces are filled with people wearing scented products, I had become more reluctant to venture out into them.  With a denial that I can only admire for its ironclad persistence, I still kept telling myself that this would pass on its own.  However recently I was diagnosed with CFIDS (chronic fatigue syndrome) and EI (environmental illness) or MCS (multiple chemical sensitivities syndrome). They often go together.  I have since learned that more and more people are being affected by the massive increase in environmental pollution over the last few decades.  You might even call us the proverbial “canaries in the mine” – who may be the early victims of the philosophy of better living through chemistry.  We may be the ones whose bodies are warning everyone about mounting environmental concerns.

I gathered the information below* for various sanghas I am in because I really want to be able to sit with my sangha without getting sick.  However the products people wear, plus the incense use, currently make that impossible for me.  Who knows how many other sangha members are too shy to come forward and talk about this issue.  I can say that as I’ve “come out” to folks about this, an amazing number of people have confessed their chemical sensitivities to me.  There is an aura of shame and/or unworthiness that seems to go with this condition, as if we’re somehow to blame for being sick – as if this is our personal neurosis.  I’m writing this article in the spirit of reaching out.  This issue can, and has in the past, led to dukkha and separation.  However I’d like to see this be a transforming agent to lead us to a greater sense of the interconnectedness and community that we already have.  As a canary, I want to use this suffering to help all beings!

 

List of commonly found fragrance-free products


Facts

  • Currently about 15% of the U.S. population is chemically sensitive.
  • Because of the alarming increase in the occurrence of MCS, 25 American states have proclaimed MCS Awareness Week, some for 6 years in a row.
  • MCS is officially recognized by U.S. Federal Government agencies, including the Social Security Administration, HUD, the EPA, and the Americans with Disabilities Act.
  • According to the June 5, 2000 edition of Business Week, the population that is allergic to chemicals will grow to 60% by 2020.
  • Millions of people worldwide, including many children, have become sensitized due to exposures to dangerous pesticides used in schools, housing, offices, malls, lawns, and public parks.
  • One in five people experience health problems when exposed to fragrances.
  • 95% of the chemicals used in fragrances are derived from petroleum and are neurotoxic.
  • Chemicals used in fragrances can cause cancer, birth defects, central nervous system disorders and allergic reactions such as asthma attacks, which can be fatal.
  • Once sensitization has occurred, even small amounts of a substance can cause symptoms, and even “natural” substances such as essential oils may trigger an adverse reaction, such as asthma attack; migraine; headaches; dizziness; skin rash; nausea; muscle and joint pain; hair loss; memory loss; inability to concentrate; seizure disorders; hyperactivity in children; depression; sleep disorders; eye, ear, nose, mouth, and throat irritation; etc.
  • Fragrances are a form of pollution. Synthetic musks have hormonal effects, cause cancer, and are long-lasting environmental contaminants found in human tissue, blood, breast milk, water supplies, fish and wildlife.
  • Most chemicals, including 90% of pesticides, have not yet been tested.

 

Multiple Chemical Sensitivities (MCS) and Environmental Illness (EI)

MCS is a form of Environmental Illness (EI). EI can result from chemical injuries caused by pesticides or solvents and can be reactivated by subsequent exposure even to low-level amounts of certain chemicals. Someone who has MCS can be harmed by exposure to the chemicals that produce the fragrances found in common products such as: after-shave, scented hair products, cosmetics, lotions, deodorants, laundry detergents, fabric softeners, incense, dry-cleaning solvents, and air fresheners.  However other common products such as glue, carpets, paint, pressed wood furniture, foam mattresses, photocopier emissions, auto exhausts, gasoline, carbon paper, felt pens, ink, barbecue grill fumes, and new building materials can also make people with MCS ill.

A person with MCS needs to avoid using scented products, being with other people who use such products and being in places that have picked up their smells. Fabrics in clothing and handbags absorb fragrances from the environment and can be harmful to people with EI. Be aware that “natural” is an unregulated term and an “unscented” product may contain masking fragrances which actually make the product more toxic.

People with EI may get sick from products even when they cannot smell them.  Being fragrance-free protects everyone’s health. 

 

Policy reflecting our Interconnectedness

Public spaces, including doctor’s offices and community centers as well as dharma centers, are increasingly recognizing the need to address mounting concerns about chemical sensitivities.   In the spirit of making sanghas accessible to all who have a sincere desire to practice, we encourage centers to honor the needs of persons with MCS. To create a safe space some dharma centers are asking everyone to be fragrance free when coming in for practice and/or meetings (see below for details).  Because the needs of persons with MCS vary, accommodations often need to be made on an individualized basis.  Some people may need to sit near open windows, while others may find the street fumes bother them.  When possible, centers may purchase a good quality air purifier which filters out both particulates and VOC’s (volatile organic compounds – illness-causing chemicals) to protect the air quality. People with MCS can then sit near the filter. 

As a compromise, since newcomers are unaware of the fragrance-free policy and since others may forget from time to time, these centers are working towards creating three zones: a space for those with MCS, a buffer zone for those who do not have MCS but are fragrance free, and an area where those who are wearing fragrances can sit. However, if a fragrance is pungent, the wearer may be asked to wash it off by an MCS ally (see next section), and/or meet in another space.

 

Allies

The role of allies is crucial in this work of making our world accessible to everyone.  In this context, they are people who do not have MCS, who can serve in the sangha as protectors for those of us with MCS.  Allies can:

  • Sniff out people wearing any kind of fragrance and address the issue, rather than the sangha waiting for someone with MCS to do it.   If the latter happens, the person with MCS will get sick from having done that detective work, and having had that exposure. 
  • Talk to folks who are resentful about losing their freedom to choose about what body products they wear, so that the person with MCS doesn’t have to deal with both the illness and all the potential resentments/ misunderstandings that surround it.  People who are resentful about personal freedom issues have understandable concerns about autonomy, and deserve to be treated with respect and dignity.  However, that is more appropriately the job of an ally. 
  • Set up an informational evening with folks with MCS attending to answer all questions.  There the community can air questions and resentments so they are not swept under the carpet to fester.  Usually when people have a chance to connect with the suffering behind this issue, natural generosity and connection blossom spontaneously!

 

How to be Fragrance Free

  1. Laundry detergents – these must be 100% fragrance free. “Unscented” may mean that a masking fragrance has been added. “Natural” is an unregulated label and some “natural” products contain essential oils which are dangerous to some people.
  2. Avoid soaps and liquid hand soaps that contain fragrances or “natural” essential oils.
  3. Perfumes, colognes and after shave lotion should not be worn in the zendo.
  4. Lotions must be fragrance free.
  5. Cosmetics should be fragrance free.
  6. Fabric softeners and dryer sheets contain chemicals which are especially harmful (can cause CNS damage, cancers, respiratory disturbances, hypothermia, etc.) Regular brands like Bounce should never be used.
  7. Avoid permanent press or wrinkle free clothing.
  8. Hair products – Use fragrance free shampoos and conditioners.
  9. Sweaters, jackets and handbags that have been in spaces where fragrances are found will be contaminated and may need to be left in the waiting area.
  10.  Avoid the use of air fresheners and incense. Even products labeled “natural” can be hazardous and the fragrances will enter your clothes and be carried with you.
  11.  Dry cleaning solvents are problematic.

List of commonly found fragrance-free products

Resources

Chemical Injury Information Network (CIIN)

The CIIN is a support and advocacy organization dealing with Multiple Chemical Sensitivities. It is run by the chemically injured for the benefit of the chemically injured, and focuses primarily on education, credible research into MCS, and the empowerment of the chemically injured.

www.ciin.org

Debra Lynn Dadd’s web site

Gives resources focused on improving your health by removing toxic chemicals from your home, and helping us make wise consumer choices about lessening our impact on the environment when we buy products we use at home every day.

www.dld123.com

Magick Botanicals

A leader in manufacturing products for people with chemical sensitivities and environmental illness.

www.magickbotanicals.com

MCS: Health & Environment

A Chicago-based national support group that offers a Resource Guide, bimonthly newsletter, meetings, speakers, lending library.

www.mcshealthenviron.org

N.E.E.D.S., Inc.

Nutritional information and shopping site for the health conscious and environmentally sensitive person.

www.needs.com

Nirvana Safe Haven

Wide array of products for people with chemical sensitivities and environmental illness.  Business is owned by an elderly woman with MCS herself.

www.nontoxic.com

Other web sites:

www.mcs-global.org

www.nettally.com/prusty/mcs.htm

www.drrap.com

www.chem-tox.com

www.ourlittleplace.com

www.rmeha.org

www.thebestcontrol.com

www.satori-5.co.uk

www.princesstigerlily.com/mcs/mcs_by_area.html

www.herc.org

 

There is no separation. When we act in a way that protects the life of others, we are protecting ourselves, our environment and future generations.

 

Sentient Beings are numberless, I vow to save them.

* Thanks to Margi Gregory and Anraku of the Zen Center on Main Street in Northampton, MA for all their work on which this article is based; to Al Wood for his MCS support; and to my BPF sangha for their help and generosity.

 

 

 

 

 
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